Comments for DSGO Community Forum http://www.ozarksdsg.org/community Down syndrome group of the Ozarks community forum and discussion board. Sat, 10 May 2008 01:28:34 +0000 http://wordpress.org/?v=2.3.1 Comment on TOYS by Lynn Neidigh http://www.ozarksdsg.org/community/2008/05/06/toys/#comment-187 Lynn Neidigh Fri, 09 May 2008 17:59:51 +0000 http://www.ozarksdsg.org/community/2008/05/06/toys/#comment-187 Mindy, I have a question. Are you selling these? Giving them away? Loaning? Why I ask is because after I sent out your e-mail it was sujested to me that DSGO begin to collect these things and add them to our lending library. So next time - DSGO may have a place for you to place items. Mindy,

I have a question. Are you selling these? Giving them away? Loaning?

Why I ask is because after I sent out your e-mail it was sujested to me that DSGO begin to collect these things and
add them to our lending library. So next time - DSGO may have a place for you to place items.

]]> Comment on Picnic Update by admin http://www.ozarksdsg.org/community/2008/04/15/picnic-update/#comment-185 admin Wed, 07 May 2008 20:58:36 +0000 http://www.ozarksdsg.org/community/2008/04/15/picnic-update/#comment-185 Thank you to everyone who attended our 2nd Annual DSGO Family Picnic!!! It was a huge success! We would really like to thank everyone who helped make this event possible. We all enjoyed The Petersen Family Band who were truly exceptional. These generous businesses donated food and prizes for our event: Simon Battlefield Mall, Kidgits Club Dillon’s Downtown Bar-B-Que (Willard) The Duttons Grand Country Music Hall Theater Hilton Branson Convention Center Hotel IMAX Theater Jubilee Market McDonald's MacFarlane's Murfin's Market Olive Garden Outback in Branson Price Cutter Quizno’s Subway Walmart THANK YOU Elena and Leanna for all your hard work on another great party! You guys are the best! Thank you to everyone who attended our 2nd Annual DSGO Family Picnic!!!

It was a huge success! We would really like to thank everyone who helped make this event possible. We all enjoyed The Petersen Family Band who were truly exceptional.

These generous businesses donated food and prizes for our event:
Simon Battlefield Mall, Kidgits Club
Dillon’s
Downtown Bar-B-Que (Willard)
The Duttons
Grand Country Music Hall Theater
Hilton Branson Convention Center Hotel
IMAX Theater
Jubilee Market
McDonald’s
MacFarlane’s
Murfin’s Market
Olive Garden
Outback in Branson
Price Cutter
Quizno’s
Subway
Walmart

THANK YOU Elena and Leanna for all your hard work on another great party! You guys are the best!

]]> Comment on Be a part of Oprah’s Big Give for DSGO! by Lynn Neidigh http://www.ozarksdsg.org/community/2008/03/11/be-a-part-of-oprahs-big-give-for-dsgo/#comment-176 Lynn Neidigh Sat, 26 Apr 2008 18:41:11 +0000 http://www.ozarksdsg.org/community/2008/03/11/be-a-part-of-oprahs-big-give-for-dsgo/#comment-176 Congratulations Elena for another Job Well Done! What a great success! Thank you for helping to support DSGO mission. Thank you for all your hard work. Congratulations Elena for another Job Well Done! What a great success! Thank you for helping to support DSGO mission.
Thank you for all your hard work.

]]> Comment on Bake Sale in Branson! by Lynn Neidigh http://www.ozarksdsg.org/community/2008/04/04/bake-sale-in-branson/#comment-175 Lynn Neidigh Sat, 26 Apr 2008 18:38:39 +0000 http://www.ozarksdsg.org/community/2008/04/04/bake-sale-in-branson/#comment-175 Kudo's to Leanna for doing a great job with the Bake Sale! A sincere - thank you - from DSGO for helping to support the organization. Your the best! Kudo’s to Leanna for doing a great job with the Bake Sale! A sincere - thank you - from DSGO
for helping to support the organization. Your the best!

]]> Comment on Toliet Training by elena http://www.ozarksdsg.org/community/2008/01/09/toliet-training/#comment-142 elena Mon, 24 Mar 2008 22:47:09 +0000 http://www.ozarksdsg.org/community/2008/01/09/toliet-training/#comment-142 Has anyone tried that 3-day potty training method? My mom said that they used to use it with kids with special needs too (back in the old days when I was little). Just wondering if anyone's tried it. Has anyone tried that 3-day potty training method? My mom said that they used to use it with kids with special needs too (back in the old days when I was little). Just wondering if anyone’s tried it.

]]> Comment on Be a part of Oprah’s Big Give for DSGO! by Leanna http://www.ozarksdsg.org/community/2008/03/11/be-a-part-of-oprahs-big-give-for-dsgo/#comment-134 Leanna Wed, 19 Mar 2008 19:22:11 +0000 http://www.ozarksdsg.org/community/2008/03/11/be-a-part-of-oprahs-big-give-for-dsgo/#comment-134 Girl you know I'll be there, And if you need any help you now how to get ahold of me. Lee Girl you know I’ll be there, And if you need any help you now how to get ahold of me. Lee

]]> Comment on nutritional intervention by jennifer giordano http://www.ozarksdsg.org/community/2008/03/05/nutritional-intervention/#comment-122 jennifer giordano Tue, 11 Mar 2008 00:32:44 +0000 http://www.ozarksdsg.org/community/2008/03/05/nutritional-intervention/#comment-122 I wanted to add that there are some recent studies I have read about on the net that seem to indicate ginkgo biloba is beneficial to learning and memory in individuals with DS. I plan to look into this further. Also, DHA and omega 3 is great for brain development. Mama Jean's on Campbell off of Sunshine has this supplement in kids formula that is pleasant tasting that my boys like and will take. I wanted to add that there are some recent studies I have read about on the net that seem to indicate ginkgo biloba is beneficial to learning and memory in individuals with DS. I plan to look into this further. Also, DHA and omega 3 is great for brain development. Mama Jean’s on Campbell off of Sunshine has this supplement in kids formula that is pleasant tasting that my boys like and will take.

]]> Comment on nutritional intervention by jennifer giordano http://www.ozarksdsg.org/community/2008/03/05/nutritional-intervention/#comment-121 jennifer giordano Mon, 10 Mar 2008 17:01:19 +0000 http://www.ozarksdsg.org/community/2008/03/05/nutritional-intervention/#comment-121 Lynn, No we chose not to use Piracetam, although at the time, Dr. Leichtman recommended it for all his patients. To us, making sure Joseph got all his nutritional needs met was a no-brainer but we couldn't quite make the leap to a pharmaceutical. A friend of mine did use Piracetam for her son off and on. She could not say whether it was making a difference or not, though his development was quite good. Likewise, there was no way to know if having Joseph on Nutrivene-D was making a difference since there is no way to know what he would have been doing or experiencing without it. I think that is the main problem with many interventions - no way to tell if it is impacting your child's development or not, thanks to the unique ways DS manifests itself in each individual. Which interventions to employ is the jurisdiction of the parents and we just make the best decisions we can based on the information we can access with the best interest of our little one in mind. Lynn,
No we chose not to use Piracetam, although at the time, Dr. Leichtman recommended it for all his patients. To us, making sure Joseph got all his nutritional needs met was a no-brainer but we couldn’t quite make the leap to a pharmaceutical. A friend of mine did use Piracetam for her son off and on. She could not say whether it was making a difference or not, though his development was quite good. Likewise, there was no way to know if having Joseph on Nutrivene-D was making a difference since there is no way to know what he would have been doing or experiencing without it. I think that is the main problem with many interventions - no way to tell if it is impacting your child’s development or not, thanks to the unique ways DS manifests itself in each individual. Which interventions to employ is the jurisdiction of the parents and we just make the best decisions we can based on the information we can access with the best interest of our little one in mind.

]]> Comment on nutritional intervention by Lynn Neidigh http://www.ozarksdsg.org/community/2008/03/05/nutritional-intervention/#comment-120 Lynn Neidigh Mon, 10 Mar 2008 02:04:10 +0000 http://www.ozarksdsg.org/community/2008/03/05/nutritional-intervention/#comment-120 Jennifer, Did you ever use Piracetam or know of any parents who have tried it? This is the supplement that increases the amount of blood to the brain. Jennifer,

Did you ever use Piracetam or know of any parents who have tried it? This is the supplement that increases the amount
of blood to the brain.

]]> Comment on nutritional intervention by jennifer giordano http://www.ozarksdsg.org/community/2008/03/05/nutritional-intervention/#comment-117 jennifer giordano Sat, 08 Mar 2008 01:24:07 +0000 http://www.ozarksdsg.org/community/2008/03/05/nutritional-intervention/#comment-117 Elena, We did not have a blood test prior to starting Nutivene-D. Joseph began the vitamins at about 8 weeks old. Dr. Leichtman has an extensive blood test recommendation. He did have the tests at about one year of age and his results were normal. I had Joseph's regular doctor check the ingredients prior to starting the vitamins and he confirmed that there was nothing in them that would harm Joseph. During the time he was on the protocol, Joseph was rarely ill and never had any ear infections. Joseph did have an issue with part of the protocol, the enzymes (for digestion)were unnecessary and caused him some problems. Once Dr. Leichtman became aware of the effects, he had Joseph discontinue them. Joseph was on Nutrivene-D until about age 4 when he began to refuse it because of the strong taste and smell. Elena,
We did not have a blood test prior to starting Nutivene-D. Joseph began the vitamins at about 8 weeks old. Dr. Leichtman has an extensive blood test recommendation. He did have the tests at about one year of age and his results were normal. I had Joseph’s regular doctor check the ingredients prior to starting the vitamins and he confirmed that there was nothing in them that would harm Joseph. During the time he was on the protocol, Joseph was rarely ill and never had any ear infections.
Joseph did have an issue with part of the protocol, the enzymes (for digestion)were unnecessary and caused him some problems. Once Dr. Leichtman became aware of the effects, he had Joseph discontinue them. Joseph was on Nutrivene-D until about age 4 when he began to refuse it because of the strong taste and smell.

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